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Aidan had surgery that night to relieve the pressure around his brain. He had an external shunt fitted allowing the CSF an alternative route to flow and thus reduce the pressure. We were told that Aidan would face further major surgery the next morning with a view to removing the tumour, but that there was a significant risk of brain damage and that Aidan may be left partially paralysed or unable to speak.
Three days later, Aidan had to go through further brain surgery to put a permanent shunt in place as his body was no longer able to regulate the flow of CSF on its own. Obviously this news was absolutely devastating — we cried and cried for days. This meant that Aidan would have five cycles of chemotherapy, each 28 days long, followed by a cycle of very high strength chemotherapy and stem cell rescue. For much of the time, starting in December , Aidan was neutropenic had no immunity and therefore had to remain an in-patient, often confined to one room, in the Schiehallion Ward at Yorkhill.
By the end of the first cycle, Aidan had lost weight, lost his hair and could no longer walk. He was fed through a nasogastric tube and received regular blood and platelet transfusions. He had a central line to administer the chemo and several times he suffered infections of the line, as well as other infections due to his lack of immunity. On three occasions these infections resulted in septic shock. Aidan was given several courses of IV antibiotics, alongside some serious pain control morphine and ketamine.
Despite this, Aidan remained an absolute joy. Aidan had bi-monthly MRI scans to monitor the effectiveness of his treatment. It made a big difference but, by the end of the protocol, there was still evidence of the tumour in his brain and spinal cord. This would last six weeks with radiotherapy to his full brain and spine with a boost to the original tumour site every day of the week, Monday to Friday. The upside was that Aidan would remain well enough to stay at home and travel to and from the Beatson each day; the downside, apart from the treatment itself, was the need for him to be put under general anaesthetic each day due to the need for absolute precision of the treatment.
Again it was Aidan who took all of this in his stride and gave the rest of us the strength to see it through. As long as he got to spend some time in the playroom and got his toast and milk when he awoke after the anaesthetic, he was happy. He would run along to the radiotherapy room waving at all the adults waiting for their treatment — it was amazing for everybody.
Complete remission had not been achieved and there were no further intensive treatment options available. The consultant gave us a glimmer of hope by explaining that the remaining disease had no blood supply and there was a possibility that it could be dead tissue that would disperse in time.
We were sent away and Aidan was closely monitored for recurrence via regular MRI scans. It was a routine scan in June that broke our hearts. It showed that there had been significant tumour growth in another area of the brain. Aidan had not displayed any symptoms, so it was a complete shock.
Furthermore, we had been told that if the cancer recurred there would be no cure. We administered the oral chemo at home and the dosage attempted to balance effectiveness of treatment versus Aidan feeling well enough to enjoy as normal a life as possible for as long as possible. Given the circumstances, we really did have a lovely 14 months.
Aidan started nursery, loved it and made many friends. During this time, Aidan became a big brother when little Luca was born on 16 th July In October , Aidan had to come off the treatment again. The MRI at that point showed once again that there was no evidence of the cancer in his brain. It was heart-breaking.
One final prospect remained in the form of a drug trial being conducted at several medical institutes world-wide. Fortunately for us, the nearest centre was Newcastle. Aidan was accepted on the trial and we started weekly trips to the Freeman Hospital. Early trial results had been positive with a number of patients with medulloblastoma responding well to treatment.
Although still classed as chemotherapy, the trial drug used an alternative method for preventing further tumour growth, targeting a specific type of medulloblastoma cell which as it turned out was not the type of medulloblastoma that Aidan had rather than the traditional method of killing off tumour cells whilst also sacrificing healthy cells within the body.
The first MRI scan was scheduled after the second month of the trial, but before Aidan got to that point we were already starting to notice subtle changes in his speech and mobility. We asked for an earlier scan to be conducted and the result confirmed that the trial drug was not working for Aidan.
From that point, things progressed quickly with Aidan becoming more symptomatic. Increased pressure in the brain due to tumour growth and oedema meant that Aidan was increasingly being sick and in pain. His symptoms were controlled as well as possible with steroids, morphine and anti-sickness medication — there being no more active treatment options available.
This has only been successfully completed before by a team of swimming professionals and the weather conditions and currents are very changeable which is a huge challenge. You have until 15 July to get involved and be in with a chance of joining the team! All you have to do is visit www. To find out more and start fundraising please go to www.
Beginning at Kirkbright in the South of Scotland and heading north to the Strathy Point on the coast, the Hare and the Tortoise covered 1, miles ofScotlandbetween them as they raced to beat each other to the finish line. Running along the line of four degrees west of longitude, Chris climbed every mountain and hill that arose in front of him and crossed any water he encountered.
A pure cross country run, he covered approximately miles over 9 days. Chris was only allowed to deviate by metres on this longitude line during his efforts to reach the finishing point. Virgin Money Giving is the official fundraising partner for the event, which combines adrenaline sports such as mountain biking and canoeing, with strategy and mental agility.
Going head to head in a series of stages lasting anything between hours, the Virgin Money Giving team used strong strategic and physical ability to outwit their competitors in stages which included:. Night Time Boggle. Given 1 hour 45 minutes to make words of three or more letters using a giant grid, the team split into pairs and visited letter points situated in the grounds of DunsterCastle.
Awarded bonus time for each valid word, the team finished 27 th completing three short words. A final stage deciding the winner of the challenge and being broadcast on Channel 4 on July 31 at am, the team cycled and ran a hilly route undertaking mental challenges in action zones placed around the course.
Staying with the team at all times, the Virgin Money Givers crossed the finish line in 2hrs 45 minutes after passing through the Encryption, Memory, Intelligence and Logic Zones. Exhausted but proud of their contributions towards an amazing fundraising event, which included a charity car wash and pub quiz prior to the challenge our Virgin Money Giving team were proud to come a very respectable 55 th place and are already looking forward to next year!
Beginning their walk at Laura Lynn House, 19 year old Sam and 17 year old sister Annie, will walk with parents Jane and Paul, finishing 8 weeks later on the 26 August. I will have the luxury of spending 8 weeks with my healthy teenagers and if this can help these families in a small way with out adventure it will be worth every step.
Running on a bed of ice to help provide water for poor communities, James will have only 6 to 12 feet of frozen water separating him from the 12, feet of the freezing Arctic Ocean. Racing the Evora GTE for the Lotus Jetalliance team, non-professional racing driver Martin Rich has had the Le Mans car emblazoned with the names of the supporters who have participated in his fundraising efforts by making donations. Fed up spending five days a week sitting at your desk, working through lunch and staying late?
Need an exciting challenge to inspire your workplace?
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|Investment policies of non banking financial institution in india||Obviously this news was absolutely devastating — we cried and cried for days. As long as he got to spend some time in the playroom and got his toast and milk when he awoke after the anaesthetic, he was happy. For these children, clinical trials can be a lifeline — but before were often only available in highly specialised centres in England. Within minutes of the scan we were ushered into a small room and our worst fears were realised. Sign Up.|
|Schiehallion ward yorkhill investments||He had an external schiehallion ward yorkhill investments fitted meaning of systematic investment plan the CSF an alternative route to flow and thus reduce the pressure. Going head to head in a series of stages lasting anything between hours, the Virgin Money Giving team used strong strategic and physical ability to outwit their competitors in stages which included:. The first MRI scan was scheduled after the second month of the trial, but before Aidan got to that point we were already starting to notice subtle changes in his speech and mobility. Beginning at Kirkbright in the South of Scotland and heading north to the Strathy Point on the coast, the Hare and the Tortoise covered 1, miles ofScotlandbetween them as they raced to beat each other to the finish line. Starting and finishing in Hyde Park, the beautiful On three occasions these infections resulted in septic shock. The MRI at that point showed once again that there was no evidence of the cancer in his brain.|
|Centauri investments with high returns||We were told that Aidan would face further major surgery the next morning with a view to removing the tumour, but that there was a significant risk of shares short investopedia forex damage and that Aidan may be left partially paralysed or unable to speak. The Schiehallion ward yorkhill investments Stage A final stage deciding the winner of the challenge and being broadcast on Channel 4 on July 31 at am, the team cycled and ran a hilly route undertaking mental challenges in action zones placed around the course. We were a little concerned, but put it down to the holiday sun and different diet. Other ways to help How is the money spent? Aidan was accepted on the trial and we started weekly trips to the Freeman Hospital. Clinical trials give children access to a new type of treatment when conventional treatments have failed. Going head to head in a series of stages lasting anything between hours, the Virgin Money Giving team used strong strategic and physical ability to outwit their competitors in stages which included:.|
|Mazda vest||From that point, things progressed quickly with Aidan becoming more symptomatic. Starting and finishing in Hyde Park, the beautiful This meant that Aidan would have five cycles of chemotherapy, each 28 days long, followed by a cycle of very high strength chemotherapy and stem cell rescue. For much of the time, starting in DecemberAidan was neutropenic had no immunity and therefore had to remain an in-patient, often confined to one room, in the Schiehallion Ward at Yorkhill. Recent post by Page. Clyde 1.|
They are not nurses, but angels. Since Lewis' diagnosis, the Robertsons have built up strong bonds with parents whose children are being treated alongside Lewis. Sadly, many of them have suffered tragic losses. In the last year, Gillian and Billy, both 37, have watched no less than six families lose a child to cancer or leukaemia, a constant reminder of the severity of the life-threatening illness Lewis is battling.
Gillian, a full-time mum who gave up her sales career to look after her sick son, said: "Lewis is doing great just now, but it is heart-breaking when you hear of other stories. You really feel for these parents, but you're also glad it's not happening to you.
It's like being a member of a club, but one we don't want to be a part of. Membership to this 'club' lasts for at least three years, after that Lewis will no longer require treatment. Gillian said: "Life is on hold until he stops 'chemo' altogether in September Until then I don't think we'll ever get back to normal. Lewis endured six, eight-week chemotherapy blocks and a cocktail of medication, including steroids which caused his face to swell. Because of the strength of the 'chemo', Lewis' leg muscles were weakened and the toddler, who'd been walking since months-old, was robbed of his mobility.
He also lost all his blond hair. But, not wanting Lewis to feel any different, eldest brother Callum and dad Billy shaved off all their hair too. But there was a devastating setback when his Port-a-Cath - a device used for administering drugs intravenously - caused an infection. More recently Lewis has suffered two seizures, but he has bounced back and is like any other two-year-old. He has learned to walk again, enjoys playing outside with his brothers and still loves his food.
His remarkable journey has been chronicled in a diary, written by Gillian, who has promised to show it to her son when he is older. She said: "I have kept his hospital name-tag, and all his cards and cuddly toys. One day I'll sit down and tell him 'this was your start in life'. It's hard to believe he was so ill and had a life-threatening illness not so long ago. When you have a sick child you certainly do find out who your friends are. Lewis and his brothers were delighted to meet some of their Rangers football heroes.
They even met striker Steven Naismith, on the day he was unveiled as Rangers' new signing. Throughout the past year, Gillian and Billy have been to hell and back, but nursing their sick son has had a positive affect on their outlook on life. They are planning a very special Christmas and also hope to fulfill their sons' dream, which is to swim with dolphins. Gillian, who along with Billy has raised thousands of pounds for Yokrhill and cancer charity CLIC Sargent, added: "When Lewis comes off treatment, we'll do things we maybe wouldn't have done.
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News all Most Read Most Recent. Just one question though to Jamesie of Albannach "who ate all the pies"? We were amazed by the amount of prizes donated to the raffle, and the donations came from everywhere. The music was as normal 'phenomenal', with the fantastic Ted Christopher, who can wind up any audience using his wide repertoire of songs. We also had the sensational Albannach who play their own brand of tribal music very loudly. It was absolutely mental on the dance floor with all ages up doing their bit.
Crann Tara are extremely grateful to have two class acts they can rely on for performing at this gig. It is fantastic to think that all these musicians played for expenses only. The two bands have agreed to return for us next year, with the same expenses deal on offer. They purchased two Playstation 2 consoles and two Digi boxes. Seeing the children in this ward makes you realise how lucky we are to be healthy. It is a humbling experience to see the way children, and their parents cope with this traumatic event in their life.
Below is a photo we took including, Douglas, the staff, and a patient with her mother. This is what we purchased for the Sciehallion Ward. They purchased many of the items suggested by the ward, to help their young patients. This was a fantastic gesture on behalf of the Early learning Centre and Crann Tara thank them for their generosity. In the photographs below, you can see the all the toys and equipment they managed to acquire with your money.
Looking at young Josephs face in the picture below, you can see the pure amazement at all the toys on offer. Joseph after much deliberation picked the Tower of Doom and was away back to his room as quickly as possible. This was to let his daddy build it for him in record time.
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